Saturday, May 25, 2013

Research that Benefits Children and Families -- Uplifting Stories



            If I had to the means and knowledge to conduct research studies about any topic, it would be about Autism Spectrum Disorder.  As a parent of a child with Autism, I have had the opportunity to witness how this disorder affects the lives of children who suffer with this disease.  My initial area of interest would be how this disorder became so prevalent in the lives of children within the past 20 or more years whereas before, we really did not hear a lot about it.  I would like to discover what the causes are and what we can do to prevent other children from suffering from this disorder.  I would also like to know why some children are affected more severely than others and because it affects the brain, is there a way to determine whether a child has this disorder prior to birth?  
            These are just a few of the questions that I would seek to answer so that I would be able to help parents with children who have this disorder and for those who are looking to have children, we would be able to test for this disorder prior to the child’s birth or at least before their child turns 2 or 3.  This is when the effects of the disorder is most noticeable. 
            I was fortunate enough that my son was able to overcome some of the difficulties he experienced so that he was able to graduate from college successfully and is currently working.  It was not an easy journey but I am very proud of how much he has accomplished.  I also work with children with special needs each year, I have children with Autism enrolled and because the spectrum is so wide, I have seen children on both ends of the spectrum from the severe and profound (Rett syndrome or Childhood Disintegrative Disorder) to the milder form of Asperger's Syndrome.  I have been passionate about learning as much as possible about this disorder because of the experiences I have had with both my son and other children who suffer from the disorder.

1 comment:

  1. It is so good that your child has come so far. Parents of children with a disability have to be advocates. I wish that parents were given funds to do this kind of research. It is more personal when it is one of your own.

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